Stinky Feet Pt. 2

Did you catch Part 1 of my story?

And it continues:

I gave up on doctors for several months.

Then one day I finally said I’ve had enough. I went to my primary doctor and said “please do something, I can’t take it anymore”. She couldn’t give me typical pain medications, because they could potentially mask  inflammation, something they were trying to keep an eye out for. She decided to try me on a medication for fibromyalgia, even though that’s not what was going on. Her theory was that it was a similar chronic pain process, so maybe, just maybe, it would have an effect.

I was willing to try anything. If she had told me to hang upside down with my finger on my nose three times a day I probably would have tried it. Unfortunately the medication is frightfully expensive, so I’m limited to half a dose a day. Let me tell you, half is a million times better than nothing.

Yes, I still have pain, but now it’s manageable. And manageable is my new best friend. I wish someone would have thought of this earlier, but I can’t look back like that. I’m grateful that the doctor was willing to give it a try. I guess she finally believed I was struggling after 10 months of coming to her for the same complaint. I’m glad I had the courage to go back and ask for help yet again.

So where do I stand today, thirteen months into this journey?

Thousands and thousands of dollars in medical debt later, I still have 0 answers. None. A few vague theories, a handful of let’s just wait and sees. No answers. I’ve adjusted. I take my medication, along with vitamin B12, like clockwork. It may be half a dose, but that half a dose is priceless. My energy levels have started to return, my hair has stopped falling out, and it’s starting to grow back in. I’m now sporting a new style I like to refer to as my “hair-hawk”, an awkward splay of 1/2 inch hairs stick out of the rest of my long hair like I was attacked by a static ball. An unruly display of way-too-short-wannabe-bangs constantly stick up off my forehead. But they’re a-growing :)

My grip is poor, but I can write and type and cook and wash my own hair. My feet are weak, but strong enough to support me and get me around. I can’t stand on my toes, or wear shoes with heels, but I’ve been re-learning how to run… just a little differently.

Like I said, my pain isn’t gone, but it’s manageable. And manageable is the new gone. :)

Thanks for listening. And if I thoroughly bored you, I promise not to let it happen again ;)

Read Part 3

{ 12 comments… read them below or chime in }

Farmer Gal May 5, 2010 at 3:47 pm

No, I’m not bored. I’m totally intrigued! And I feel for you. I know you’re not looking for sympathy, but you’ve got mine just the same. Your commitment to remaining healthy and staying positive is wonderful. I need a dose of that sometimes.

Thanks for stopping in at my site. Love yours. I’ll be back! :)

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rebekah (clarity in creation.) May 28, 2010 at 6:32 am

hey girl – i just wanted to encourage you. i have been struggling since i was 16 with what i now know is fibromyalgia, but my story sounds similar to yours. i know it’s the most frustrating thing in the world to not have answers! i am really impressed with how maturely you’ve apparently handled it, and want to encourage you for the future. if you can make it through this, you can do anything! don’t forget – life is so much bigger that what your body feels like. it’s why god gave us bodies, hearts, and minds!

keep your chin up, girl, and if you need someone to listen, i get you!
-rebekah

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Jodie July 6, 2010 at 10:09 pm

I just read your story and I was not bored. I wish I knew the answer. I love your positve attitude.

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Ashley July 20, 2010 at 11:32 pm

Wow. How am I just reading this now? I can’t believe this! Your positive attitude will get you far but I’m sure it’s not easy. Keep at it girl. Inspirational!!

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Nicole July 29, 2010 at 7:41 am

Oh my gosh, I have alopecia which is where you lose hair/go bald for no reason and there is no cure. I was feeling a bit sorry for myself today and I just read your story. I am NEVER EVER going to complain about my hair again. It’s just hair and you have way worse problems. I realy hope you find a cure, you deserve it so much :)

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Penny August 13, 2010 at 12:48 am

Wow, that is definitely a mystery. I have lupus and hypothyroidism, and they both sound like feasible probabilities. But….I’m sure you were tested for both of those.

Well…..I am very glad things are improving for you. But I do wish a doctor would have been able to give you more information. It would be comforting to know the cause.

Great blog. :-)

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Mac August 13, 2010 at 3:44 pm

Wow, that is a crazy story… I hope some doctor can come up with something soon! Hang in there :)

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Mac August 13, 2010 at 3:44 pm

Wow, that is a crazy story! I hope some doctor comes up with something, and soon! Hang in there :)

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Charlotte August 17, 2010 at 3:52 pm

That story sounds similar to my own experience, but worse. I am so sorry for all you have had to go through. I got several tears in the ligament under my toe, however I would not heal. After 7 months on the couch and drugs that started giving me panic attacks, I found out I was allergic to certain foods, went to acupuncture and am trying any mean I can find to heal and it is finally working. I know some of your pain in not being able to walk or do anything you normally do. I hope if you do not find your answer of what is wrong you find a way to get back into the life you want to live. Family and friends really make it possible to stay positive. Good luck!

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Cynthia (It All Changes) August 20, 2010 at 3:19 pm

You are handling this with such patience and maturity. I pray they find an answer for you shortly. Living in pain is horrible especially when you don’t know why.

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Tiny Blue Lines March 8, 2012 at 8:09 am

This is terrible. If there’s one thing about being a nurse, it has taught me that 98% of the time, the healthcare word is a complete guess. No one really knows, and there are so many similar symptoms, it’s scary.

On a related note, I ran all summer, training for a 10-mile, and about a month after I stopped running, I had the same pain/swelling/bruising in my left foot. It’s been almost 6 months and the pain is gone, but my foot is still swollen…all.the.time. It’s so frustrating because no one knows what it is!
Tiny Blue Lines Just blogged…Don’t Bank Your Baby’s Cord Blood–Donate It!

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Klein September 21, 2013 at 2:25 am

PLEASE try potassium!!!!a healthy dose 3-4 tablets a day, 2 times a day should start healing this injury in a few days. Works for my Achilles heels issues from running as well as many fellow runners…it’s worth a try is it not??

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